News
Jonah Phillip Shankar
It is with heavy hearts and profound sadness that we announce the passing of our beloved Jonah. He left us early in the morning on May 28th; peacefully, bathed in the light of sunrise, surrounded by his family. “Life is short, stunt it,” wasn’t just a quote Jonah...
Jonah Battles On During the Pandemic
It has been almost two years since Jonah was diagnosed with DIPG. When his cancer was first discovered, he went from seemingly normal to unable to walk in days. His speech was declining. He couldn’t swallow properly. The tumour was insanely aggressive, and it was a...
Fall 2019: Part II – On a Rampage
Jonah was home from Burnaby for about five seconds before he was off on his next great adventure. This time he went to Victoria for six weeks for a part-time course in web development. While he learned he doesn’t like web development nearly as much as game...
Fall 2019: Part I – The Stuff That Dreams Are Made Of
It was undoubtedly difficult to watch his friends disembark for university without him for the second year running, but Jonah had some exciting adventures while his friends toiled away during the fall semester. As his peers were reacquainted with school, Jonah and his...
The Tumour Shrinks and Other Summer Gifts
The seasons are turning, and it seems natural to reflect. This summer was an entirely different one from 2018’s. This summer was a gift that didn’t seem likely last summer. This summer was time together – time on epic adventures and time savouring the usually mundane,...
It’s a Bird! It’s a Plane! It’s…
It has been months and months since an update. What the heck has been going on?! Well, the someone who writes these updates went off and birthed a cousin for Jonah and Marcus. It turns out you can’t just gift a baby to teenage boys and expect them to feed and water it...
Jonah Setting World Records
At the end of November, Jonah made a very quick and very routine trip to England for his third set of infusions. He was in and out and home again after only a week away. While the travel is gruelling, having him home as much as possible, especially over the holidays,...
Where Did They Go?
Jonah returned to Canada, and we went AWOL. We were just so excited to have him back that the updates got neglected. We do especially treasure time together these days. Jonah’s return coincided with reading break, so all his friends were back in town to “study for...
Jonah’s Home Soon. Get Your Flu Shots!
Today, Jonah’s on the homestretch of this trip to England. He and Charlotte left Tring and are back in London for two more infusions before returning to Canada on Monday. By this afternoon, Pacific time, he will have received the first of the last two doses of this...
More Resting
Only three more weeks and Jonah’s home again! It’s been 11 days since the last Jonah report; what the heck has he been doing? Resting, mostly. He did have brain surgery just over two weeks ago, after all. Since getting out of the hospital in London, Jonah and...